Your friends are fundraising. Don't miss out, opt in.

Fundraiser complete

This page is now closed, but you can still donate to the cause directly

Kate's Awareness for Chiari Malformation and IIH

Kate Parfrement is raising money for THE ANN CONROY TRUST
Donations cannot currently be made to this page

Selling Handmade Items · 29 March 2019

Ann Conroy Trust provides Support, Education and Research for people living with Chiari Malformations, Syringomyelia and associated conditions.

Story

Thanks for taking the time to visit my JustGiving page.

In November 2018 Kate was diagnosed with chiari malformation & intracranial hypertension.. She had some symptoms for years but the doctor didn't think any thing of it 5 years ago, She kept going back and getting the same answer. Until she went to get her new glasses and her left field vision in her eye was blurry. 

She was sent to see an eye doctor and quickly admitted her to hospital thinking she was had a brain tumour, after a few days 2 lumbar punctures and 3 CT and MRI scans they diagnosed me with intracranial hypertension (Swelling on the brain, False brain tumour) I went home after a week and the after another week later she got rushed back into hospital, the doctors said she had a cerebral leak in her back. (Fluid from around my head is leaking into my back) after more tests she had a blood patch to block the hole and was then diagnosed with chiari malformation. They said she was born with it but and it doesnt always show in childhood. 

Since November 2018 and Janurary 2019 she has had 3 lumbar puntures, 2 blood patches and a nerve block in the back of her head she is now currently waiting for decompression surgery where they cut a little bit of her skull out at the back of her head. 

Now we want to spread the awareness as you can be born with it without having problems until you are a teenager or adult. 

You can join us, by buy or Sell on our group and donate a % to this cause or just be there for awaress, support and make friends. Join our Facebook Group here https://www.facebook.com/groups/HookersoveTogether/

Donation summary

Total
£0.00
Online
£0.00
Offline
£0.00

Charities pay a small fee for our service. Learn more about fees