At 18 months old our beautiful boy Jake began having seizures. After many weeks at Great Ormond Street he was finally diagnosed with a rare mitochondrial condition called Alpers.

We were told it was life-limiting but had no idea of how much time we had with him so tried to make every day count. In between hospital visits he was reasonably well and remained our ever happy, loving little boy with a wonderful cheeky sense of humour.

Devastatingly Jake passed away a year later aged 2 and half having fought a brave fight with a battle he could never win. He slipped away peacefully in his sleep on 28th May 2016 held tightly by his devoted Mummy and Daddy.

Keech Hospice made an unbearable situation bearable, by allowing us to stay with him until the end. We slept in the bed with him while they looked after all his care, and ours, allowing us to concentrate on just being 'Mummy and Daddy'. 

They have supported us in the weeks after his death and truly are an amazing charity run by outstanding people. For that reason we have chosen to dedicate a page in memory of Jake to fundraise for them.