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Usher Syndrome awareness and fundraising

Keith David is raising money for Cure Usher Syndrome

Participants: Gareth David, Huw David, Neil Thomas, Jon Nation, Adam Jones.

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HYROX: Manchester 2024 · 27 January 2024 ·

Cure Usher raises funds for research into finding a cure for Usher syndrome, the leading cause of genetically inherited combined hearing and sight loss worldwide.

Story

Following a successful fundraising event where Jon and I completed a Hyrox event, we are now looking to complete the Welsh 3 peaks challenge to try and raise further funds towards a cure for the rare genetic condition my son Rocky has. 

Some people may recently have seen the Diagnosis of Usher Syndrome in Eastenders, CureUsher and some of the board there were influential in getting the diagnosis into the show and raising awareness to help in further education and fundraising so the Charity are very active and every little we can donate to them helps. 

Thanks in advance for anybody able to donate.


CUREUsher raises funds for research into a cure for Usher syndrome, the leading cause of genetically inherited hearing and sight loss - and raises awareness of the condition affecting only 40,000 people worldwide. CUREUsher is a registered charity in England and Wales, number 1181293

Donation summary

Total
£2,160.65
+ £433.00 Gift Aid
Online
£2,160.65
Offline
£0.00

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