Charcot-Marie-Tooth Disease is one of the most common genetic conditions in the world although not many people have heard of it. It is a progressive nerve disease which leads to muscle wasting. Currently there is no available cure or treatments for CMT at the moment but there are ways the condition can be managed through physio, surgery, mobility aids and ankle foot orthotics.

My symptoms began when I was a kid where they noticed I was slower than the rest of my class and walked as my head teacher called it “like a horse” this was due to foot drop. Since then I’ve had appointments after appointments and I am now in a wheelchair full-time. I suffer from muscle wastage, weakness in arms, legs and hips, chronic fatigue and chronic muscle spasms.

So to raise money I am setting myself a goal to do the equivalent of the channel swim which is 21 miles within the month of May. I will be tracking my progress through my watch and will post updates. I'm hoping to raise as much money as possible so that I can help fund the research into CMT, continue the drug trials that are currently being undertaken and hopefully help the foundation find a cure!

Your donation would mean so much to me, and every penny would be appreciated. Even if you can't donate please share my story so that it can reach as much people as possible. I spoke about doing this last year with my mum and since her passing away it has made me more determined to actually do it.

Thank you for reading, 

Kiera