We have chosen to support and fundraise for Alice’s arc as it holds a special place in our heart. All the children within Alice’s arc community have had rhabdomyosarcoma just like Leila. 

In October 2021 Leila was diagnosed with high risk metastatic alveolar rhabdomyosarcoma fusion positive. Since her diagnosis we have felt there is a lack of awareness and funding towards rhabdomyosarcoma.  Leila is currently on the FaR-RMS clinical trial and after finding  out we couldn’t donate directly to them below is our reason for choosing Alice’s arc. 

How does Alice’s arc help? 

By collaborating with a network of leading
research institutions, paediatric sarcoma
professional bodies and pediatric oncology
hospitals to formulate clinical research that is
focused on rhabdomyosarcoma and aligned to
our research objectives, with a patient focus.
Currently, this involves several research projects
linked to the new FaR-RMS clinical trial