My beautiful four year old niece Naomi was diagnosed with Alternating Hemiplegia of Childhood (AHC) when she was 8 months old. 

I have decided to run the Brighton Marathon 2015 to help to raise money to find a cure for AHC. This is a very rare neurological condition in which the child suffers from repeated weakness or paralysis down one side of the body. This damage can include cognitive impairment, behavioral and psychiatric disorders, and various motor impairment. AHC is extremely rare, affecting approximately 1 in 1,000,000 people.