Laura Smith

I am running the GNR to fund research into Alpers' syndrome!

Fundraising for Ryan Stanford Appeal
£893
raised of £600 target
by 42 supporters
Donations cannot currently be made to this page
Event: Great North Run 2021, on 12 September 2021
Ryan Stanford Appeal

Verified by JustGiving

RCN 1134498

Story

Hello!

This September I will be running my 2nd half marathon to raise money for the Ryan Stanford Appeal. This wonderful charity funds research into understanding the causes of Alpers' syndrome, a devastating, fatal mitochondrial disease which involves severe, uncontrollable epilepsy and a loss of developmental milestones in children. 

As many of you will know, my current PhD research has been funded by the Ryan Stanford Appeal for the past 3 years. It is essential future research can continue to help understand the causes of disease and to potentially identify targets for therapies to help stop the inevitable, progressive neurodegeneration.

All your donations, however big or small, will be extremely appreciated by the many families who have sadly lost their children to Alpers' syndrome including Ryan Stanford's. I will be running for you!

Thank you for all your donations in advance!

Laura x

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About the charity

Ryan Stanford Appeal

Verified by JustGiving

RCN 1134498
The charity is raising money to fund medical research into Alper's Syndrome - a very rare, terminal condition generally found in young children

Donation summary

Total raised
£893.00
+ £115.25 Gift Aid
Online donations
£893.00
Offline donations
£0.00

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