Leonora Phelan

Be happy with the skin you are in!

Fundraising for Ichthyosis Support Group
£1,404
raised of £1,000 target
by 26 supporters
Donations cannot currently be made to this page
Participants: Matt Phelan
Ichthyosis Support Group

Verified by JustGiving

RCN 1142457
We support everyone affected by ichthyosis to improve their quality of life

Story

As you may know, several members of my family and I have a rare inherited skin condition called Epidermolytic Ichthyosis (EI). Its impact ranges from pain and hypersensitivity to blistering and infections.
On November 13th I am going to be running in the Athens Marathon (the ‘original’) to raise funds for The Ichthyosis Support Group (www.Ichthyosis.org.uk) - a small charity who have provided us all with invaluable guidance and encouragement. 
In undertaking this Marathon I’m also hoping to prove to myself and others afflicted by this condition that despite the hurdles presented to our daily lives – and sporting ambitions (!) - we can still achieve our goals if we put our minds to it.
Even if you do not feel able to donate, I am still very grateful for your support.
Be happy with the skin you are in! XXX Lenny

About the charity

Ichthyosis Support Group

Verified by JustGiving

RCN 1142457
The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.

Donation summary

Total raised
£1,403.77
+ £307.50 Gift Aid
Online donations
£1,403.77
Offline donations
£0.00

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