Thanks for taking the time to visit our JustGiving page.

We have chosen to take part in this 5k walk/wheel so that together with others who support Spina Bifida Hydrocephalus Ireland (SBHI), we can contribute to raising €50,000 during our 50th anniversary year.

As the vital services which SBHI provides are not fully funded, we must fundraise and apply for grants, one of which is the National Lottery Funding (NLF).

For many years the NLF has helped to fund our respite services which provide a vital break for those who live with spina bifida and/or hydrocephalus and their families.

This year we have received a reduction of over €50,000 which represents more than 50% of the funding received in previous years.

The explanation from the HSE, who administer the NLF, for the grant reduction, is that they had to use the money given to organisations supporting those with disabilities to those assisting the elderly.

Here at SBHI we want to keep our respite services going despite these drastic cuts. As we ourselves are the Respite & Recreation Team which facilitates the breaks for our SBHI members throughout the year, we know how important this service is. This is why we and many others will be taking on The 50 for 50 Challenge, and raising €50K for SBHI.

Your support, of any amount, is greatly appreciated - thank you so much for believing in us and donating in this way.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.