Story
Thanks for taking the time to visit my JustGiving page.
Hana is now 5 years old and was diagnosed with Rett Syndrome over two years ago. Rett Syndrome is a severe, lifelong neurological disorder.
Rett UK were the first people we turned to and we are extremely grateful for all their help, advice and support they provided us with. They aim to maximise the potential of people with Rett Syndrome and minimise the impact.
We are so proud of Hana and all the progress that she continues to make, despite the daily struggles that she faces. I have told her though that this is the last marathon I run before passing the baton to Tom, and eventually Isaha ;)