Thanks for taking the time to visit my JustGiving page.

Cri du Chat Syndrome is caused by a missing section of the short arm of the fifth chromosome (5p-, in medical terms).
Around 85% of the time it is random, but in around 15% of cases it’s inherited from a parent who may have the missing part, but not in the right place. This is called a translocation. That’s why, as a parent of a child with CdCS, it’s sensible to get your own chromosomes tested if you are considering having more children.
The effects of the syndrome vary a lot, depending on how much of the chromosome is deleted. It’s important to note that not all the symptoms and treatments listed here will be relevant to all children (or adults) with CdCS.

The Cri du Chat Syndrome Support Group was founded in the mid 1980s by Ann Wilson, a parent of a child with Cri du Chat Syndrome, after discovering there was no support group specifically for this syndrome.

A steering group was formed in 1991, and the group became a registered charity (#1044942) in 1993.

The support group is made up of families and relatives of those with CdCS, as well as research members who have expressed an interest in this condition. However, the group is open to anyone with an interest or need, whether in the UK or abroad.

The group provides information, advice and support through its Clinical Advisory Group, formed by members of the committee and outside professionals.

We receive no government funding and are funded by individual and corporate donations as well as fundraising activities.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.