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On Monday 16th May 2016  my sister gave birth to the most beautiful little girl called Amber-Ivy. She appeared to be a normal healthy happy baby. However, at her 6 week check up she did not appear to be reaching certain milestones. After many trips to hospital and testing, Amber-Ivy was diagnosed with SMA type 1. 

SMA is a muscle debilitating and is a life limiting condition. My sister, partner, friends and family have continued to raise awareness of the condition and money for the charity in Amber-Ivy's memory. 

Please support me in continuing to raise money to support the charity in its research to find a cure for SMA.

Thank you.