Mohammad Malik Breath of Life Fund

Nadia Bari is raising money for Action For Pulmonary Fibrosis
In memory of Mohammad Malik
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Action for Pulmonary Fibrosis (APF) is a growing community of patients, families, researchers and healthcare professionals striving to find a cure for pulmonary fibrosis so that everyone affected by the disease has a better future. Every penny donated is a victory against this devastating disease.

Story

Monday 4th May 2015 

As many of you may be aware I lost my dad last week to a horrible incurable lung disease 2 years after being diagnosed with idiopathic pulmonary fibrosis (IPF). I never spoke about it as did not want to broadcast what my family and dad were going through. I feel I now need to do something more. I have decided to devote the rest of my life through my company (Deeya Jewellery UK ltd) to help support various charities including the ones that supported my mum in caring for my dad. Charities such as Marie Curie and Action for Pulmonary Fibrosis did such an amazing job helping my mum and dad through this traumatic time. My superwoman mum was caring for my dad 24 hours a day with the help of my brother. For one and half years she managed by herself but she was breaking down. She was dressing, cleaning, shaving, bathing, making food, staying up at night caring for him, taking dad to a million hospital appointments, taking dad for walks in a heavy wheelchair, phoning to get oxygen, getting medicines and so much more. She was taking on my dads full weight (heavy due to the high dose of steroids) on herself to move him around, to take him to toilet and outside, into the car, etc damaging her back. She was affected mentally, physically and emotionally but she couldn't bear the thought of putting him in a care home. My mum contacted these charities for help and  very quickly got a hospital bed arranged, palliative care, hospice visits, night nurses, extra care help, electrical wheelchair, special cutlery, eating table for bed, special chair, mobile oxygen, medicines brought to the house, regular doctor and hospital visits at home. Please can you donate £5 or anything you can of your precious hard earned money ar the following link www.justgiving.com/Mohammad-Malik-Much-Loved to help support other families and the charities to contribute to do amazing work, create awareness, raise funds for research to hopefully one day find a cure so that no one has to die like my dad did. I thank you all in advance. 

1st May 2015

My amazing dad  

I loved you more than life itself dad.  Life is so empty and meaningless without you in it. Nothing really matters anymore. You spent your whole life working yourself to the bone. Trying to build an empire around you to take care of your whole family. Not only your children and your wife but your brothers and sisters and their children. Not thinking twice about helping people in their time of need. Such ambition and drive to do more. Wanting to make a school, hospital, masjid, madrassa. (Although your zoo idea in Pak was a bit mad). I remember when we were little you always took us exploring. Always spending time with us regardless of how busy you were. We had ups and downs. I was always the one to argue with you trying to get you to do the right thing and to stay with us always as loved you so much. Only Allah knows how long you were in pain for as you never used to tell us. Hiding it from us. Then this illness with an unknown cause came from nowhere and took you away from us slowly and painfully. Pulmonary fibrosis they called it. Scarring of your precious lungs which took over your entire body. No matter how many drugs they gave you or how many tests they done they weren't able to make it go away. Incurable apparently. It made you dependant. My dad the most independent and strongest man in the world now unable to breathe or walk without wires, oxygen masks and support but still you kept going long after the time doctors had given you. I wanted the doctors so badly to take my lung to give to you but they couldn't as both your lungs had gone, I wanted to take you abroad to get you the best doctors alive but they said you wouldn't survive the op. I knew you would though as I knew how strong you were but at the high risk of losing you earlier we didn't go down that route. Accepted it. I told you not to give up and you kept fighting even when doctors were saying there was nothing more they could do. 

The noise of the oxygen cylinders in the house still echoing in my mind. Your things just reminding us of you constantly. My amazing mum and my brother caring for you full time doing everything for you as couldn't bear the thought of putting you in a care home amongst strangers away from us as doctors had advised to do. My distraught little sister joking and always having a laugh with you getting away with everything she said. 
You were always trying to be strong until your last days. 'I'm ok' you used to say all the time. But you weren't ever ok and now we are not ok but we need to be strong for our kids and each other like you were for your kids and wife. In your last few weeks you were saying how you were going to come and see me and will just sleep on sofa downstairs. 
Allah (SWT) made sure your whole family was by your side including your 4 week old grandson. Inshallah Allah (SWT) is taking care of you now and gives you the highest place in Jannat with you having suffered so much in this temporary life. I love you more than I can ever say and miss you immensely dad and nothing will ever fill this darkness and emptiness with you gone. We are lost without you. 

Monday 27th April 2015 

Firzana 



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