Nick Thorne
Nick's Coast to Coast (150 miles) in a day page
Fundraising for CdLS Foundation UK & Ireland
Story
Thanks for taking the time to visit my JustGiving page.
I will be participating in the Northern Coast to Coast challenge on the 23rd June 2018, cycling from Seascale (Lake District coast) to Whitby (North Yorks coast) in a day. The route is a 150 miles with 4500 metres of ascent taking in the infamous Hardknott and Wrynose Pass amongst other 'slopes' on the way. It is an organised ride but I will be cycling solo and drafting anyone/anything I can get close to. Fingers crossed the wind is blowing the right direction!
And now the serious bit, my son Austin (2.5 years old) was born with a very rare genetic syndrome (Cornelia de Lange Syndrome), briefly, this has affected Austin with slow growth (6.5kg), physical and mental developmental delay, hearing loss amongst other equally serious issues. Despite all this he is a very cheeky chappy!
I would like to raise some money for the CDLS charity that provides support to children, adults and families affected by the syndrome. The charity is very small and run by volunteers, it receives no government funding and relies solely on donations. A large proportion of the money raised supports further research into the syndrome at Birmingham University and twice a year the Doctors/PHD students come (for free) to the CDLS conferences and present the latest research. It is likely that any money raised will have a positive impact on Austin's and other children's future as we learn more about the syndrome.
If you could spare a few pounds to sponsor me it would be very very much appreciated. On the off chance any business's wish to sponsor me I will be contacting the local papers (West Somerset) over the coming months to raise awareness of CDLS and the ride. I will also be wearing a bespoke jersey with lots of room for company logos.
If you have made it this far down then thank you so much, needless to say I'm equally excited and terrified about the ride (more terrified!). Now to lose some weight and get fit!
Nick, Kerrie and Austin Thorne x
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