*** Postponed to 2022 ***

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Raising Funds for PSP in memory of Keith Griffiths who lost his fight on 26th December 2021.

Our little gang is  joining a group of 40+ novice cyclists who are travelling over to France on Aug 3rd 2022 and then cycling approx. 350 miles back from Paris to Penybont (Bridgend). Its a completely self-funded challenge all in aid of raising as much awareness as we possibly can of 2 dreadful diseases. Progressive Supranuclear Palsey, and Motor Neurone Disease. 

We'd also like to raise funds for the PSPA along the way. 

The rest of the team of crazies signed up to this 4 day challenge, also raising awareness & funds for MND are :- Justin Hostettler-Davies, Chris Banner, Ellis Banner, Rachel Banner, Simon Bannister, Guy, Jack & Joseph Bartlett, Greg Brett, Jamie Brooks, Paul Clarke, Mike Cottle, Gary Cox, Dean Crook, Lisa Dando, Karen Davies, Leighton Davies, Jayne Dingle, Rhys Dowling, Alex Duckett, Steve & Suzanne Duffill, Amanda & Brian Edwards, Christopher Edwards, Kevin & Tracey Ellis, Andrew Frost, Matthew George, Rhys George, Josh Granelli, Helen Griffiths, Gareth Gwynn, Ian Henry, Stuart Hitchings, Adrian Hooper, Shaun Horrex, Dave & Tracey Hughes, Simon James, Martyn John, Luke Jones, Gareth Lewis, John Maidment, Neil & Tracey Morgan, Theresa Phillips, Mark & Morgan Prime, Steve Quinn, Kevin Ridge, Aled & Eleri Schiavone, Lance Thomas, Gavin Tuck, Carolyn Williams, Cathryn Williams, Laura Williams, Kim Williams & Andrew Woodgate.

A Brief Guide to PSP

PSP is caused by the progressive death of nerve cells in the brain, leading to difficulty with balance, movement, vision, speech and swallowing. It is so called because it is 

Progressive - It gets steadily worse over time

Supranuclear - it damages parts of the brain above the pea sized Nuclei that controls eye movement

Palsy - It causes weakness

PSP is a rare condition - research suggests there are only around 4000 people in the UK living with the condition at any one time

Early on Symptoms may resemble those of other neuro-degenerative diseases, such as Parkinson's, Alzheimer's, Motor Neurone Disease, or Multiple System Atrophy. As a result many people are misdiagnosed.

There are no simple tests to diagnose PSP, but brain scans are used by neurologists for diagnosis as they help by excluding other conditions.

Like many of the conditions mentioned above, there is currently no cure for PSP.

Hopefully in the future research will lead to new treatments to stop or at least slow down the progression of the condition

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PSPA is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. We aim to improve the lives of everyone affected by PSP and CBD. We rely entirely on voluntary donations, and that's why we need your support.