I am excited to be running the London marathon 2022. It will be my first marathon and will definitely be a massive challenge for me. I have chosen to run for the CdLS foundation as it is a charity which is close to my heart. My son was diagnosed with Cornelia De Lange Syndrome (CdLS) when he was 2 years old. At the time we hadn't heard of the syndrome and didn't really know where to look for information, until we found the CdLS foundation.

CdLS affects children in many different ways, including but not limited to: reduced growth, global developmental delay, feeding problems, speech and language difficulties, hearing problems, seizures, heart and kidney abnormalities and, in many cases, limb abnormalities.

The CdLS Foundation support people affected by CdLS and their families through holding global conferences, family meetings, running a helpline and producing leaflets, newsletters and running a website (www.cdls.org.uk). I know from experience that the families really appreciate the efforts that they make. They are a small charity, run entirely by volunteers including parents and professionals. They do not receive money from central government. The only money that they receive is through donations from family and friends of people affected by CdLS.

I appreciate times are hard but if you would like to help me in trying to reach my target and at the same time support our charity, it would be really appreciated.
Thank you so much,
Hannah Xxx