Pituitary's Rare Disease Day 2016
Participants: Rare Disease Day 2016
on 29 February 2016
Participants: Rare Disease Day 2016
on 29 February 2016
Rare Disease
Day 2016- 29 February
Help us celebrate by taking part in
this year's campaign:
Spare, Share, Aware
This year to help us celebrate Rare Disease Day and to help us raise awareness of pituitary conditions and The Pituitary Foundation we are asking you, our incredible supporters, to take part in this campaign. It couldn't be simpler to take part:
Spare - Either £5 or £10
Share - This link with your friends on social media platforms
Aware - By sharing our message we will reach more people, helping to
increase awareness.
If you would prefer to donate by text then simply text the message
PFRD99 £10 to 70070
The Pituitary Foundation will be getting involved with activities surrounding Rare Disease Day on the 29 February, the theme this year is living with a rare disease. We will be attending the receptions organised by Rare Diseases UK.. These events are a chance to raise awareness amongst decision makers, get up to date on current legislation, and they allow patient organisation to meet with each other
For those who have come across this link through a friend or through social media and don't know anything about The Pituitary Foundation please read below:
It is estimated
that there are approximately 70,000 people with a pituitary condition in the
United Kingdom. To meet the need for information and support The Pituitary
Foundation was set up in 1994 and was subsequently registered as a charity in
September 1996
The Pituitary Foundation is a national support and
information organisation for pituitary patients, their families, friends and
carers. We are the UK's leading charity providing support to people
affected by disorders of the pituitary gland such as Acromegaly, Cushing's,
Prolactinoma, Diabetes Insipidus and Hypopituitarism
A pituitary condition can be
a lonely, isolating, life limiting and in many cases, critical, illness.
Patients' conditions can be managed but will never be cured, they will remain on
medications to manage their condition for life.
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