Story

I'm fundraising for my son, Ben. He is 6 years old and due to complications during my pregnancy Ben has cerebral palsy.  This condition causes tightness and spasticity in both arms and legs. Sitting unaided is difficult, commando crawling is done with maximum help & walking is something Ben would just love to be able to do unaided but can't.  He needs physio daily, to be put in equipment such as wheelchairs & standing frames to avoid him forming deformities as he's growing & needs help with feeding, drinking & all other daily tasks we all take for granted.

In October 2014 we took Ben to St Louis, Missouri, America & for the life-changing operation. SDR (Selective Dorsal Rhizotomy) removed the spasticity in Ben's legs, therefore removing all the pain & enabling Ben to use his "normal" muscles. We are fundraising for any physiotherapy & equipment that Ben may need post op. We are very grateful to have been able to take Ben for this life changing operation but the essential post op therapy costs £15k a year!!

As you can see we are incredibly lucky to have hit that £60k target to be able to take ben & since the surgery he's progressed in many areas!! 

Post op Ben needs essential intense physiotherapy. The £60k target covers the surgery & 1 year. Through meeting other parents who have been through this i have learned that post op therapy costs on average £10-£15k a year!!! So to hit £80k raised in total before we head off to America would cover Ben for 3 years & really give him a great head start post-op! This would give Ben the opportunity to get the most out of this operation!
 
Ben has had intensive physiotherapy courses at a centre in Oxford in the past. He has therapy 2 hours a day, for 3 weeks, with highly trained therapists using equipment they don't have any where else in England. We aim to take Ben there 3 times a year but at £1500 a session it means we need to fundraise to continue to take him. We're booked in 4 sessions in 2015 as he'll need post op. He also has weekly sessions with a private therapist.
 
Ben is such a determined, fun and happy boy but his physical restrictions are extremely frustrating for him. His mind is so willing but his body just won’t let him do what he wants to. We would like to do everything we can to help him overcome these challenges and live his life as full and as pain free as possible!

We are raising money for Tree of Hope to help fund this ongoing treatment and any donationswould be greatly appreciated!

 

Without ongoing treatment like this Ben will fall behind. But again, this therapy doesn't come cheap.

Since starting this extra work with Ben he has rocketed with improvement. His strength has improved and he is more stable and aware.

 

So, please, please support Tree of Hope to help Ben have the treatment he so badly needs.

 

Would be willing to help us in our journey to change Ben's life? By donating safely on this website, being sponsored to do something, organise an event-pub event, cake sale, party, football match, golf day, etc, donating a service or prize to be auctioned off or used as a prize at one of our events...any help will be hugely appreciated!!!!
 
Please please please keep Ben in mind-you'd be changing his life!
 
For more information on Ben please visit his facebook page:  Ben's Therapy Fundraising" or by clicking on https://www.facebook.com/pages/Bens-Therapy-Fundraising/200857373319514?ref=ts&fref=ts
 
Thank you for reading

 

Thank you

 XxxX

 

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So please dig deep and donate now.

 

Updates 11

Just added a huge amount of offline donations!!!!! For for £11,800 from First Wessex!! Incredible!!!!

01/09/14 05:49

Flights & accomodation booked for our trip to America!!!! Flying 26th September, pre-op assessment 29th September, surgery 2nd October & fly home 30th October! Eek!!

26/07/14 06:41

Just added Ben's half of what my awesome brother & his friend Paul raised by walking London to Brighton! Amazing people, amazing achievement!! Thank you!!

31/05/14 07:49

After speaking to other parents, whose children have had SDR, they've informed me that they're post op therapy is costing an average £10k a year! Iv been told we probably should have had an £80k target :-/ so any extra help to provide Ben with therapy will be hugely appreciated!

15/05/14 08:16

12 weeks since we got the yes from America! 296 twitter followers (@BensFundraising), 1,023 fb likes (Ben's Therapy Fundraising) & £58,435.41 raised-Incredible! The support has been amazing & we cannot thank you enough!!!

18/04/14 09:13

Raising money for

Tree of Hope

Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

Tree of Hope offers hope to the families of sick children in the UK who need specialist medical surgery, treatment, therapy and equipment in order to free them from suffering, giving a better quality to their young lives. England & Wales 1043092 Scotland SCO4261 http://www.treeofhope.org.uk

Donations 951

Ben's Raffle

Donation by Georgie Furneaux on 25/03/15

£2.00

+ £0.50 Gift Aid

text donation

Donation by Anonymous on 25/03/15

£2.00

via sms

text donation

Donation by Anonymous on 25/03/15

£2.00

+ £0.50 Gift Aid

via sms

text donation

Donation by Anonymous on 25/03/15

£2.00

via sms

text donation

Donation by Anonymous on 25/03/15

£2.00

+ £0.50 Gift Aid

via sms

Donation by Anonymous on 24/03/15

£2.00

+ £0.50 Gift Aid

text donation

Donation by Anonymous on 24/03/15

£2.00

via sms

text donation

Donation by Anonymous on 24/03/15

£2.00

via sms

text donation

Fb raffle Katy-Louise xx

Donation by Katylouise Turvey on 24/03/15

£2.00

+ £0.50 Gift Aid

via sms

text donation

Donation by Anonymous on 24/03/15

£2.00

via sms

You have some great photos on your sites Ben All the best :-)

Donation by Chris Lee on 17/03/15

£100.00

Winnings from Black tie do...

Donation by Gillian Martin on 10/03/15

£100.00

+ £25.00 Gift Aid

From my pampers chef party. Xx

Donation by Pauline crawley on 25/02/15

£130.00

+ £32.50 Gift Aid

For the DJ love Hayleigh and Rachel xx

Donation by Anonymous on 24/02/15

£125.00

+ £31.25 Gift Aid

Auction item. Skip hire. Thanks for a lovely night.

Donation by Karen Parsons on 21/02/15

£90.00

+ £22.50 Gift Aid

for golf voucher :)

Donation by steve buckingham on 18/02/15

£55.00

For the bouncy castle, hope to see Ben on it in April, love you! Love from Auntie P and Uncle Chalky xxxx

Donation by Paula White on 18/02/15

£50.00

+ £12.50 Gift Aid

Manchester United auction

Donation by Tara larson on 18/02/15

$370.00

Auction Item: Carpet Clean Whole House. Thank you for a great evening we had a fab night. Zoe & Stu xx

Donation by Zoe & Stu Humphreys on 16/02/15

£70.00

+ £17.50 Gift Aid

Auction item:Hilton Break with Harry Great time at the ball - many thanks. Amazing family, well done. Gilly X

Donation by Gilly Martin on 16/02/15

£250.00

+ £62.50 Gift Aid

Auction item - mini for the weekend😊 Thanks for a fab evening love Steve & Stephanie x

Donation by Anonymous on 15/02/15

£100.00

+ £25.00 Gift Aid

Donation by Anonymous on 16/02/15

£10.00

+ £2.50 Gift Aid

Payment for auction item of Family Photoshoot. Fantastic night - good time had by all. X

Donation by Auntie S on 15/02/15

£50.00

+ £12.50 Gift Aid

Congratulations on another fabulous event for Ben. £135 for the auction bid for Charlie and the Chocolate Factory tickets.

Donation by Anonymous on 14/02/15

£135.00

+ £33.75 Gift Aid

Have an amazing time tomorrow night-sorry we can't be there!

Donation by Mia, Ben & Nimah x x on 12/02/15

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£41,922.02
  • Offline donations£55,028.81
  • Text donations£386.00
  • Total raised£97,336.83
  • Gift Aid£9,422.07

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