Story

I'm fundraising for my son, Ben. He is 6 years old and due to complications during my pregnancy Ben has cerebral palsy.  This condition causes tightness and spasticity in both arms and legs. Sitting unaided is difficult, commando crawling is done with maximum help & walking is something Ben would just love to be able to do unaided but can't.  He needs physio daily, to be put in equipment such as wheelchairs & standing frames to avoid him forming deformities as he's growing & needs help with feeding, drinking & all other daily tasks we all take for granted.

In October 2014 we took Ben to St Louis, Missouri, America & for the life-changing operation. SDR (Selective Dorsal Rhizotomy) removed the spasticity in Ben's legs, therefore removing all the pain & enabling Ben to use his "normal" muscles. We are fundraising for any physiotherapy & equipment that Ben may need post op. We are very grateful to have been able to take Ben for this life changing operation but the essential post op therapy costs £15k a year!!

As you can see we are incredibly lucky to have hit that £60k target to be able to take ben & since the surgery he's progressed in many areas!! 

Post op Ben needs essential intense physiotherapy. The £60k target covers the surgery & 1 year. Through meeting other parents who have been through this i have learned that post op therapy costs on average £10-£15k a year!!! So to hit £80k raised in total before we head off to America would cover Ben for 3 years & really give him a great head start post-op! This would give Ben the opportunity to get the most out of this operation!
 
Ben has had intensive physiotherapy courses at a centre in Oxford in the past. He has therapy 2 hours a day, for 3 weeks, with highly trained therapists using equipment they don't have any where else in England. We aim to take Ben there 3 times a year but at £1500 a session it means we need to fundraise to continue to take him. We're booked in 4 sessions in 2015 as he'll need post op. He also has weekly sessions with a private therapist.
 
Ben is such a determined, fun and happy boy but his physical restrictions are extremely frustrating for him. His mind is so willing but his body just won’t let him do what he wants to. We would like to do everything we can to help him overcome these challenges and live his life as full and as pain free as possible!

We are raising money for Tree of Hope to help fund this ongoing treatment and any donationswould be greatly appreciated!

 

Without ongoing treatment like this Ben will fall behind. But again, this therapy doesn't come cheap.

Since starting this extra work with Ben he has rocketed with improvement. His strength has improved and he is more stable and aware.

 

So, please, please support Tree of Hope to help Ben have the treatment he so badly needs.

 

Would be willing to help us in our journey to change Ben's life? By donating safely on this website, being sponsored to do something, organise an event-pub event, cake sale, party, football match, golf day, etc, donating a service or prize to be auctioned off or used as a prize at one of our events...any help will be hugely appreciated!!!!
 
Please please please keep Ben in mind-you'd be changing his life!
 
For more information on Ben please visit his facebook page:  Ben's Therapy Fundraising" or by clicking on https://www.facebook.com/pages/Bens-Therapy-Fundraising/200857373319514?ref=ts&fref=ts
 
Thank you for reading

 

Thank you

 XxxX

 

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Updates 11

Just added a huge amount of offline donations!!!!! For for £11,800 from First Wessex!! Incredible!!!!

01/09/14 05:49

Flights & accomodation booked for our trip to America!!!! Flying 26th September, pre-op assessment 29th September, surgery 2nd October & fly home 30th October! Eek!!

26/07/14 06:41

Just added Ben's half of what my awesome brother & his friend Paul raised by walking London to Brighton! Amazing people, amazing achievement!! Thank you!!

31/05/14 07:49

After speaking to other parents, whose children have had SDR, they've informed me that they're post op therapy is costing an average £10k a year! Iv been told we probably should have had an £80k target :-/ so any extra help to provide Ben with therapy will be hugely appreciated!

15/05/14 08:16

12 weeks since we got the yes from America! 296 twitter followers (@BensFundraising), 1,023 fb likes (Ben's Therapy Fundraising) & £58,435.41 raised-Incredible! The support has been amazing & we cannot thank you enough!!!

18/04/14 09:13

Raising money for

Tree of Hope

Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

Tree of Hope offers hope to the families of sick children in the UK who need specialist medical surgery, treatment, therapy and equipment in order to free them from suffering, giving a better quality to their young lives. England & Wales 1043092 Scotland SCO4261 http://www.treeofhope.org.uk

Raising money for

Run by Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

Donations 969

Mine and Eddy sponsership money from the bungee jump we did 😀

Donation by Anonymous on 30/06/15

£200.00

+ £50.00 Gift Aid

I managed to raise some money, and hope ben is doing well big hugs and hope this helps a little xx

Donation by Ashley on 13/06/15

£30.00

#fightersspirit. Keep it up.

Donation by Chris "Pikey" Bucksey on 31/05/15

£10.00

+ £2.50 Gift Aid

I hope in some small way this will help towards the costs of Ben's continuing therapy. Money raised from a Line Dancing Social organised by Andrea Hill.

Donation by Anonymous on 29/05/15

£125.00

+ £31.25 Gift Aid

Donation by Anonymous on 18/05/15

Well done on your fundraising so far and wishing you luck in the future x

Donation by Julie Clayton on 06/05/15

£20.00

+ £5.00 Gift Aid

text donation

Donation by Anonymous on 06/05/15

£2.00

via sms

text donation

Donation by Anonymous on 06/05/15

£2.00

via sms

text donation

Donation by Anonymous on 06/05/15

£2.00

via sms

text donation

Donation by Anonymous on 06/05/15

£4.00

via sms

Donation by Anonymous on 16/04/15

£5.00

+ £1.25 Gift Aid

text donation

Donation by Ceri Osmond on 13/04/15

£2.00

+ £0.50 Gift Aid

via sms

text donation

Donation by Anonymous on 13/04/15

£2.00

via sms

text donation

Donation by Anonymous on 13/04/15

£4.00

via sms

text donation

Donation by Anonymous on 09/04/15

£2.00

via sms

text donation

Donation by Anonymous on 09/04/15

£2.00

via sms

Donation by Anonymous on 01/04/15

£20.00

+ £5.00 Gift Aid

Bens raffle

Donation by Eilidh x on 30/03/15

£2.00

+ £0.50 Gift Aid

Ben's Raffle

Donation by Georgie Furneaux on 25/03/15

£2.00

+ £0.50 Gift Aid

text donation

Donation by Anonymous on 25/03/15

£2.00

via sms

text donation

Donation by Anonymous on 25/03/15

£2.00

+ £0.50 Gift Aid

via sms

text donation

Donation by Anonymous on 25/03/15

£2.00

via sms

text donation

Donation by Anonymous on 25/03/15

£2.00

+ £0.50 Gift Aid

via sms

Donation by Anonymous on 24/03/15

£2.00

+ £0.50 Gift Aid

text donation

Donation by Anonymous on 24/03/15

£2.00

via sms

Donation summary

  • * Online donations£42,384.02
  • Offline donations£55,028.81
  • Text donations£408.00
  • Total raised£97,820.83
  • Gift Aid£9,530.57

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