Thanks for taking the time to visit my page. I aim to spread awareness of Motor Neurone Disease and help fund a cure to this devastating terminal illness. One pound from each person in the world can change lives. There is no cure for MND. It can leave people locked in a failing body, unable to move, talk, swallow and breathe. We can put our money together and PoundMnd.

Motor Neurone Disease is difficult to diagnose. It effects each person in a different way. Many GP's know very little about it. When my mum was 58, MND began to affect her ability to pronounce certain words. She said her throat felt uncomfortable.

My mum's GP diagnosed stress and gave her anti-depressants. My mum knew it was something more. Mum then began to slur her words. As her voice got worse she had to write things down. She was unable to speak clearly. She was referred for tests after the hospital lost the initial referral. Mum felt she wasn't being taken seriously especially as a Speech Therapist would ring her instead of texting.

It took 18 months before Motor Neurone Disease was diagnosed.

Within 2 years of diagnosis mum was gone. This was in November 2013 a few days before her 62nd birthday.

As the illness progressed mum was unable to swallow her own saliva. She would choke, fall over, drop things and lose her grip. She could no longer speak, smile or cry. Mum never complained and typed in to a communication aid 'what will be will be.'

Mum kept active and as independent as possible. Gradually she lost the ability to walk. During this time mum was also diagnosed with Breast Cancer and had to take a chemotherapy drug which caused hot flushes and other side effects.

When my mum became dehydrated and malnourished she had a PEG fitted. She initially decided not to have one. By now she could no longer talk, eat, drink or move anything apart from her arms slightly. Her mind was fully intact.

The effect MND has on a loved one is devastating to watch.

We were lucky Dad could be mum's full time carer even though he was battling Bowel Cancer himself. Also as Motor Neurone Disease hasn't appeared in our family before as it can be hereditary and pass from generation to generation.

Prior to this mum led a healthy lifestyle and was physically fit. She liked to dance, exercise and socialise. I nicknamed her 'Little Mamma' as she was only 5ft tall and wore some long kaftan's to relax in on holiday. They made her look like a little doll. I used to annoy her and sing, 'Little Mamma Little, Mamma, you're so tiny and small. Little Mamma, Little Mamma, you're the best of them all.'

Unlike other illnesses this is no cure or treatment for Motor Neurone Disease. This is why we need to donate and fund a cure together.

• A person's lifetime risk of developing MND is up to 1 in 300.
• 6 people per day are diagnosed with MND in the UK.
• It kills a third within a year and more than half within two years of diagnosis.

For more information please visit www.mndassociation.org./

- in loving memory of Frances Cecilia Tibke - my Little Mamma.