Become part of Mimi's Pit Crew and help us move #CDKL5forward on the road to a cure this June 2023 CDKL5 Awareness Month! Last year, we raised over $12,000 towards a cure. I'm going to need EVERYONE'S help to make an equally big impact this year!

Over the month of June, I'm going to walk and hike 150 miles to move CDKL5 research forward. I'll be documenting my activities on Instagram and tagging them #CDKL5forward and #MimisPitCrew to raise awareness. You can "donate" your workouts to CDKL5 awareness, too, by using the same hashtags. If you mention me in your posts, I'll share them on my account, too. Even better, if you're local to LA, let's build our buns of steel together. If we work really hard all month, we *might* get to be half as buff as Mimi (if you know her, you know she's built like a bodybuilder). An EXCITING development this year is that there is a MILE match!! So for the first time in the history of our Move CDKL5 Forward event, simply joining Mimi's Pit Crew and logging your miles will translate into actual dollars for research!! How can you say no to that?

I'll also raise awareness by getting real in my stories about life with CDKL5 for Mimi and for our family. Behind all the happy pictures in the gallery above (click on "Gallery") are struggles that impact every aspect of daily life.

Please support my efforts by giving financially whatever you can through this page. How much? A cure won't come cheap, but whatever you can give will help. Mimi and everyone waiting for a cure need you!

Thank you from the bottom of my heart!