The Foundation has quite literally been a life saver!  Firstly, we are hugely indebted to the specialist Doctors and researchers for their continued advice and support.  They give hours of their time to CdLS families across the UK and Ireland. Here's a little taster of what some of them do: https://www.youtube.com/watch?v=cK16tSB113E#t=24 

Secondly, the CdLS Foundation organises family conferences which provide families and carers with the opportunities to share their stories, learn vital information about new research, underlying medical conditions which are forever changing and crucially one-to-one consultations with the specialists. These weekends are invaluable to CdLS families and for those 2 days we feel "safe and normal". 

So... I am running this, my first marathon, in my 40th year, in order that more families can feel "normal". 

Ed & Ollie's Primary school has raised the first £1000. In light of this, I have revised the target to reflect the mileage!

THANK YOU!

 Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity. 

Better still, you can donate regularly by by completing a Standing Order form: http://www.cdls.org.uk/media/files/cdls_standing_order_form_31_january_2011.pdf