Story
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Before my dad developed calciphylaxis I had never heard of it. It is a very rare and serious disease seen in those with chronic kidney failure which can be caused by Diabetes.
In a very short time I learned that calciphylaxis takes away your chance of living a very long and full life, it stops you from having a dignified end-of-life, and it causes severe pain. The pain is what I remember most about being with dad. Pain. Excruciating. Never-ending. Pain that has no end in sight. Nights of tears, praying, attempts to end his own life.
Dad was broken by the news that he was dying. He wanted to live a full life and die of old age. He never gave up. He knew what was going to happen to him. He knew he would smell of rotten skin and didn't want his family to suffer. He knew his own family would have to give him full round-the-clock care and he wouldn't be able to take care of himself.
At the beginning of his diagnosis he explained that he wanted to stop even just one person from suffering what he was going through. That he wanted to inform and educate others about Diabetes. He talked about doing a short video but sadly, he wasn't well enough to be filmed.
He passed away on the 19th April 2016 which was 6 months from his diagnosis. That day I lost my best friend and he left a huge hole in my life. So, I'd like to do this in his memory. Raise money for the prevention and cure of Diabetes.
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