Research into Amyloidosis

Ella-Courtney Farrer is raising money for Royal Free Charity
In memory of Sally Campbell
Amyloidosis is a rare, often fatal disease, caused by accumulation of protein fibres, amyloid, in the tissues. The Fund provides invaluable support for research and patients in the National Amyloidosis Centre at the Royal Free Hospital.

Story

Firstly, thank you for taking the time to read my Mums story. The aim of this fundraiser is to raise much needed funds to continue the research into Amyloidosis and by doing this raise the awareness of this rare disease.


Amyloidosis was a word our family had never heard of until my Mum was diagnosed with it in January after 3 weeks of tests and processes of elimination.


Unfortunately by the time Mum received her diagnosis significant damage had already been done to her kidneys and liver and although she continued to fight she lost her battle on Thursday 18th March 2021.


Sally Ann Campbell, a devoted mother, Babcia, wife and friend. Mum was loved by her family but what has become apparent since her passing was the impact she had on others. She loved unconditionally and was the voice for the unheard.


Amyloidosis is the name for a group of rare, serious conditions caused by a build-up of an abnormal protein called amyloid in organs and tissues throughout the body. The build-up of amyloid proteins (deposits) can impact on the function of the organs and tissues, and can lead to organ failure. There are several types of Amyloidosis, Mum had AL kappa Amyloidosis which is the most common. 


It is fatal for about one in every thousand Amyloidosis sufferers and there are about 6,000 cases in the UK at any time.The Amyloidosis Research Fund within the Royal Free Charity supports the research, development and patients of the UK NHS National Amyloidosis Centre (NAC) at the Royal Free Hospital. The Centre, established in 1999, is funded directly by NHS Specialised Services to provide diagnostic and management advisory services for all UK amyloidosis patients.


Thank you for your time and if you have any spare change to donate to this worthwhile cause, you could prevent another family going through the heartbreak that we have and we will be forever grateful.



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About the campaign

Amyloidosis is a rare, often fatal disease, caused by accumulation of protein fibres, amyloid, in the tissues. The Fund provides invaluable support for research and patients in the National Amyloidosis Centre at the Royal Free Hospital.

About the charity

Royal Free Charity

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The Royal Free Charity supports staff and patients across the Royal Free London NHS Foundation Trust. From small acts of kindness to huge investments in research, everything we do changes lives for the better. We support our hospitals to go further, faster – delivering impact locally and globally.

Donation summary

Total
£6,231.39
+ £1,202.50 Gift Aid
Online
£6,231.39
Offline
£0.00

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