My brother Lenny was unexpectedly born with this rare condition, we could only see him on the weekend and my Mum and dad had to drive for an hour and half nearly every day to see him, Lenny didn’t come home for 7months, he had 5 operations in the end and he is now fixed with some swallowing problems that he will learn to live with , some of these children don’t always have this happy ending. I hope by shaving my head I can raise loads of money for this charity ,  We provide support for those born unable to swallow, due to the rare congenital conditions Tracheo-Oesophageal Fistula (TOF), Oesophageal Atresia (OA) and associated conditions. TOF/OA affect one in every 3,500 babies, and can only be repaired, not cured. When new parents hear the devastating news that their precious newborn baby has TOF/OA, we want to be there for them. From that first moment, to living with the condition as adults, we offer vital support and friendship along the way. Thank you so much for helping us to support our members.