Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

I have many diagnosis’s including Autism, Tourette’s Syndrome, Reflex Seizures, Anxiety Disorder, POTS, Elhers Danlos Syndrome (HSD) and Burnside Butler Syndrome.  Burnside Butler Syndrome comes from an abnormality found in my chromosomes. A microdeletion of 15q 11.2.  This is my rare condition of which professionals involved in my care know very little about.

Burnside-Butler syndrome, also known as 15q11.2 BP1-BP2 microdeletion, is a congenital disorder caused by microdeletion of DNA sequences involving four neurodevelopmental genes (TUBGCP5, CYFIP1, NIPA1, NIPA2.

There are many amazing charity’s out there but some no one ever hears about.  Sandcastle Trust provides support, grants and memories to families affected by rare genetic disorders.  They have helped me. If you have any spare small change £1 would be amazing - please donate to my page and help a family create a special memory. Help me to help another family.  I am also baking some cakes on Jeans for Genes Day and if you message my mum or dad You can order some and for a small donation to my page I will deliver them to you! 

Thank you everyone, love Sam Davies x