Samantha Wearne

Samantha's tandem skydive

Fundraising for Children's Hospice South West
£3,063
raised of £3,000 target
by 148 supporters
Donations cannot currently be made to this page
Participants: Jack Mylam
Children's Hospice South West

Verified by JustGiving

RCN 1003314
We provide respite and end of life care to make the most of short & precious lives

Story

WOW!  We did two somersualts as we jumped out. It was the most incredible, exhilarating experience freefalling from 10,000 feet at 120 mph for two miles before the parachute opened - it took 20 minutes to reach altitude but only 6 minutes to descend.

I wastn' at all nervous and I felt that Jack was with me all the way!

I would definately do it again! It was just amazing!

A big thanks to all of you that have supported me with your generous donations and help me reach my target. xxx

It means the world to me, my family and the Children's Hospice.
 

I know on one very special day Jack and I will be together again and he won't waste much time bossing me around.  It's hard to forget that Diffuse Pontine Glioma is a disease that brings a lot of pain to the children who have it and the family and friends who love them. But he is in a place free of illness and pain.

So today I remember Jack and all the children who have passed away, from this terrible disease.

Jack was a gorgeous little boy, full of kindness, fun and laughter and he brought so much happiness to so many. He was very bright and he excelled in maths. He loved his friends and family. He also enjoyed swimming and football. From the age of 4, Jack had been learning Martial Arts.

 August 2008, Jack was suffering from weight loss, headaches, nausea and double vision.   On 17th September 2008, our world came crashing down when he was diagnosed with an incurable brain stem tumour. He was treated with steriods and anti-sickness medication to help control symptoms. 

 We were told that Jack needed radiotherapy "to shrink the tumour and buy some extra time". Jack was transferred to Bristol Children's Hospital to have 6 weeks of radiotherapy and chemotherapy.

 Before Jack became ill, he was working hard towards his black belt in Martial Arts. October 2008, Jack was awarded his Black Belt at the British Open Championships. He burst into tears and said it was the "happiest day of my life".

 November 2008, we returned home to Truro where Jack continued to go to school and did swimming, football and martial arts. His treatment continued with weekly hospital appointments and cycles of high doses of chemotherapy. This weakened his immunity and made him feel very tired; he had several chest and ear infections during that time.

 April 2009, Jack's symptoms of headaches, double vision and nausea returned. An MRI scan revealed that the tumour had grown much bigger and the chemotherapy was no longer working. This is when we were told the terrible news that there was no more treatment. Jack's symtpoms of pain and nausea would be controlled as and when they occured.

 July 2009, Jack became progressively worse; he lost his balance and could no longer walk.  He could no longer play football or do martial arts, the things he loved most.  He new he was different from his friends but never complained.

 August 2009, Jack lost his speech and communicating became frustrating for him.

 August 2009, we stayed at Little Bridge Children's Hopsice South West for a short break and Jack like it so much that we returned again on 17th August.   During this stay he became very weak.  He lost the ability to swallow; he was having difficulty breathing and was in a lot of pain. He was treated with oxygen and diamorphine.

 Jack died at 5am on 31st August 2009, as I held him in my arms. No matter how much time passes, I still miss him and love him more than ever. He was not only my son but my best mate and he was such an inspiration to me as he fought the cancer so bravely.

 During Jack's illness and right up to the end of his life, he kept his cheeky sense of humour and was very brave adn strong throughout.  He never complained or got upset and his stamina amazed everyone who met him.

Even though he is no longer with me physically, he continues to inspire me to work towards fundraising and finding a cure for the disease that took his life and I realise more so than ever why I'm doing this. I know all of the fundraising accomplished so far is making Jack proud. He watches over us from Heaven as he plays with his toys and is no doubt bossing people around.   I wish I could say it gets easier. Although he is not with me physically I know he is with me in Spirit. I look forward to the day when I can hold him in my arms again.  

Special thanks to all the amazingly dedicated staff at Little Bridge Children’s Hospice. We could not have got through Jack's final days without their fantastic medical care.

I am doing a tandem skydive on 6th August to raise money for the amazing Little Bridge Children's Hospice, South West.  

I hope everyone will at least make a donation and together we can all make a difference. Please help me reach my target of £3000+ for this fantastic cause.  I look forward to seeing him again one day but until then I will love and miss him dearly, and will not stop until I have changed the world in his name and honour. I love you Jack. 

Mummy xxx

 



About the charity

Children's Hospice South West

Verified by JustGiving

RCN 1003314
At CHSW we help and support children and their families who are living with life-limiting conditions. We provide a loving and caring place for the whole family. A place where everyone can find expert care and support in facing an uncertain future.

Donation summary

Total raised
£3,063.00
+ £607.72 Gift Aid
Online donations
£2,733.00
Offline donations
£330.00

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