Sarah and Eleanors page
Participants: Helen Elmsley Eleanor Ramsden-Lister Charlene Low
Participants: Helen Elmsley Eleanor Ramsden-Lister Charlene Low
Great Strides 65 – Surrey Hills 2017 · 10 June 2017 ·
3 years ago our world fell apart when our little boy was diagnosed with cystic fibrosis. Knowing nothing but the worst case scenarios we were scared what the future might hold for our precious baby.
3 years later, lots of medication, physiotherapy and doctors, we now know that Henry has a very rare type of CF (typically for a Ramsden he has to be difficult!) And he is only the second known sufferer with his mutation which, whilst he remains pretty healthy, has its own challenges in that no one can tell us what the future holds.
So doing what we can is the most important thing to us which includes keeping him and us healthy and taking on challenges to raise money for the cystic fibrosis trust who are making breakthroughs through their research everyday.
So with Henry's fantastic aunties I am walking 40 miles (within a time limit!) To raise even more funds to hopefully find a way to a cure!
For more information please visit ://www.cysticfibrosis.org.uk/what-is-cystic-fibrosis
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