Sarah and Eleanors page

Sarah Ramsden-Jones is raising money for Cystic Fibrosis Trust

Participants: Helen Elmsley Eleanor Ramsden-Lister Charlene Low

Donations cannot currently be made to this page

Great Strides 65 – Surrey Hills 2017 · 10 June 2017 ·

Cystic Fibrosis Trust Verified by JustGiving
RCN 1079049 (England and Wales) & SC040196 (Scotland)
Cystic fibrosis (CF) is a life-shortening genetic condition that slowly destroys the lungs and digestive system. The Cystic Fibrosis Trust is the only UK-wide charity fighting for a life unlimited, when everyone living with CF can look forward to a long, healthy life. www.cysticfibrosis.org.uk

Story

3 years ago our world fell apart when our little boy was diagnosed with cystic fibrosis. Knowing nothing but the worst case scenarios we were scared what the future might hold for our precious baby. 

3 years later, lots of medication, physiotherapy and doctors, we now know that Henry has a very rare type of CF (typically for a Ramsden he has to be difficult!) And he is only the second known sufferer with his mutation which, whilst he remains pretty healthy, has its own challenges in that no one can tell us what the future holds.

So doing what we can is the most important thing to us which includes keeping him and us healthy and taking on challenges to raise money for the cystic fibrosis trust who are making breakthroughs through their research everyday.

So with Henry's fantastic aunties I am walking 40 miles (within a time limit!) To raise even more funds to hopefully find a way to a cure!

For more information please visit ://www.cysticfibrosis.org.uk/what-is-cystic-fibrosis



Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Donation summary

Total
£717.00
+ £118.75 Gift Aid
Online
£717.00
Offline
£0.00

Charities pay a small fee for our service. Learn more about fees