I am raising funds for Ehlers Danlos Syndrome (EDS) UK. They are a small national charity with an income below £500,000. 

My sister was diagnosed with EDS several years ago and we had no idea what it was, turned out neither did most people including those in medical profession. It is a genetic connective tissue disorder. It’s considered “rare” but we believe it’s common but diagnosis is missed.

There is no cure. There is a lack of treatment and very few hospitals or professionals are trained in dealing with it. 

EDS UK do a lot of awareness, run a helpline, medical research and training, however this requires money. 

I’m really fortunate that I don’t need anything and due to COVID cannot really celebrate my birthday. So please donate what you would’ve spent on my card, present, drink or dinner to my crowdfunder instead. 

Thank you