Siobhan's 26.2 mile Skate Marathon

Siobhan Cousins is raising money for Inflammatory Neuropathies UK
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Skate Marathon · 1 September 2018

Inflammatory Neuropathies UK is dedicated to helping people affected by GBS, CIDP, MMN, and over 40 other Inflammatory Neuropathies. We provide information & support (personal grants, counselling, peer support), advocate & raise awareness, and help to fund & facilitate research.

Story

Guillain-Barré syndrome is a rare autoimmune condition affecting the peripheral nervous system, usually leading to temporary or long-term paralysis. Around 80% of those with GBS will make a good recovery, but between 5-10% of people will not survive and the other 10-15% may be left with severe mobility or dexterity issues. GAIN helps people understand and manage both acute and chronic variants of the syndrome, raises awareness, and promotes clinical and non-clinical research into these conditions. 

In 2014 I was diagnosed with GBS, I spent 2 painful weeks in hospital and further treatment outside hospital learning to walk again with a physiotherapist. 

Unfortunately I relapsed just a few months later which was almost fatal. This was when the doctors told me I had to give up my dance/gymnastics. I was beyond distraught. I’d always lead an active lifestyle and Dance was my life! 

Determined not to be beaten by this disease I took my time to get better while still trying to remain positive. My friends helped me out at home with my children, as I still couldn’t pick them up for cuddles or even bath them. Knowing my boys needed me was the spark I needed to fight. 

It’s now 2018 and not only am I dancing and back at gymnastics but I now play Roller Derby for one of the North East’s best teams Newcastle Roller Girls. 

It’s nothing short of a miracle that I’m here and I thank god every day for that. 

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Donation summary

Total
£83.00
+ £14.50 Gift Aid
Online
£83.00
Offline
£0.00

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