Stephen Roberts

Stephen's Prudential RideLondon-Surrey 100 2014 page

Fundraising for Association for Glycogen Storage Disease (UK) Ltd
£130
raised
Donations cannot currently be made to this page
Event: Prudential RideLondon-Surrey 100 2014, on 10 August 2014
We support children and adults with GSD to improve their chances of a good life.

Story

Thanks for taking the time to visit my JustGiving page.

This often overlooked charity is close to our family's hearts. My younger sister was diagnosed with Type 3b GSD as a baby, through a liver biopsy. Her parents were given a very negative prognosis, ie unlikely to live past 5 yrs. Thanks to some wonderful care she has proven them wrong! She is lucky as she only has a very mild 'version' and there are others much more poorly than I've ever been. There are over 10 Types and in total only about 560 people with GSD in the UK so it is very rare. Through research there are now treatments for some of the Types but no cure and the charity urgently needs funds to continue vital support for families. Please read, sponsor and share (every little donation will help). 

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About the charity

Supports people with glycogen storage diseases, very rare genetic disorders of metabolism. Offers website, newsletter, conference/workshops. Promotes understanding of and research into GSDs which are disabling and life-limiting. www.agsd.org.uk Fundraising advice: info@agsd.org.uk

Donation summary

Total raised
£130.00
+ £26.25 Gift Aid
Online donations
£130.00
Offline donations
£0.00

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