Thanks for taking the time to visit my JustGiving page.

As some know, our eldest son, James and youngest daughter Elsie-Mai have both been diagnosed with GSDV in recent months, we are currently awaiting genetics results for younger son Alfie and tests to be carried out on eldest daughter Charlotte.

Without Andrew of AGSD, we would have been lost - it was Andrew who pointed us in the direction of the clinic at GOSH and whom has been a constant support with advice and assistance.

We decided we wanted to give something back and so have arranged a few small events including, 'sober for October', fundraising via decorating the garden for Halloween and choosing to donate the money we would have spent on Christmas cards this year.

Anyone wanting to donate along with us is more than welcome xx

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.