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CiCRA (Crohn’s in Childhood Research Association) is dedicated to Crohn’s Disease and Ulcerative Colitis in children. It aims to create a wider understanding of the condition and to raise enough funds to support medical research that will be able to find more effective treatments and an eventual cure.

Crohn’s Disease is inflammation and ulceration of the digestive tract. Symptoms can be extremely variable but often include severe pain, vomiting, dramatic weight loss or something as simple as the child constantly feeling lethargic.

Nicky is a local boy whose brother Oli Monks is taking on 9 challenges to raise funds and awareness.  This is just one of the challenges. Here is a brief story.

 Nicky, still only 13, has spent the last 4 or 5 years in and out of hospital due to crohn’s disease – missing large chunks of school and spending time with his friends. For his brother at that age, the biggest disruption was only ever whether he could complete a level of Lord of the Rings on Ps2 before dinner or if he had to actually do some homework. Nothing we say can truly emphasise how disruptive it has been to his childhood.

For some people, Crohn’s Disease is very manageable and once they enter something called ‘Remission’ they can spend long periods of their life without any major obstacles. However, for others, it can lead to life changing ileostomy or colostomy surgery which dependent on the individual can see the complete removal of the colon and/or rectum and the creation of a stoma. Sadly, this is something that Nicky has had to go through just recently and has been a traumatic experience for the whole family. 

Please help to support Nicky and Oli

THANK YOU