Thanks for taking the time to visit my JustGiving page.

Who?

I am raising funds for PWSA UK, the only UK charity that helps support those living with, or caring for someone with Prader-Willi Syndrome (PWS). 

PWS is a rare genetically- determined neurodevelopmental disorder that causes a wide range of physical symptoms, learning difficulties and behavioural problems. I am a researcher at the University of Cambridge, and my research focuses on understanding early social development in infants and children with PWS. My research aims to contribute to the progression and development of early stage preventative treatments, as well as inform the use and development of therapeutic strategies.

Why?

Over the last year, many incredible and inspirational families travelled hundreds of miles from all over the UK to participate in my research at Cambridge. They were prepared to go the distance for me, so I am about to go the distance for them! The money raised for PWSA UK goes to helping families and carers in crisis or needing help, by providing much needed information, advice and support - and often just someone who understands. 

Running Skills? 

My running skills are not great, but have significantly improved since my run-in with a Velociraptor. I jest, I'd have never legged it quickly enough carrying that backpack. The Cambridge Half-Marathon will be by some stretch, the farthest distance I have ever run, and a real test of my own endurance.  

Donations of all sizes are gratefully received, and donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Many thanks,

Suzannah (Sooze) Lester