As many of you will know, last year I followed and supported little Charlie Gard’s journey.
Charlie was born on the 4th August 2016, he was perfectly healthy but then he started to decline and was later diagnosed with Mitochondrial Depletion Syndrome
Funds were raised and treatment offered in the States but sadly in Charlie’s case, due to ongoing legal battles, time ran out and sadly Charlie passed away on the 28th July 2017, just days before his 1st birthday.
I'm in absolute awe of his parents Connie and Chris. Despite the tragic circumstances they have worked endlessly since the passing of Charlie to set up the Charlie Gard Foundation.
The Charlie Gard Foundation aims to become one of the UK's leading charities dedicated to fighting mitochondrial disease. The foundation raises awareness for the condition, invests in world-class research into viable treatments, and supports families whose lives have been touched by this incurable disease.
For months now I have discussed with many of you how can I go about raising funds for the Charlie Gard Foundation and the 10K in Rochdale is the event I have chosen.
This is a big challenge for me. I can barely run 1k, never mind 10k and with 2 small children (Caitlin 4 and Lucas 3), finding the time to train is going to be tough but just thinking of Charlie, Connie and Chris is enough to spur me on.
Anything you can spare would be much appreciated.