NKH 100 Mile Challenge! · 20 March 2023

The Mikaere FoundationVerified by JustGiving
RCN 1200720
The Mikaere Foundation supports families with children who have Nonketotic Hyperglycinemea. We raise awareness, connect families and fund research into NKH treatment. We bring hope and build futures for NKH kids.

Story

Get moving with the NKH 100 Mile Virtual Challenge! 100 Miles along the Thames Path – Streatley to Sea! Walk, run, cycle, swim, dance – you choose! Anyone, anywhere can participate. All you need is a smartphone. All proceeds raised go towards NKH Research. Nonketotic Hyperglycinemia (NKH) is a rare and terminal neurometabolic disorder that affects children. It means they can't process glycine, which is a neurotransmitter. Toxic levels of glycine cause the neurones to overfire and die, causing brain damage and severe disability. It's also life limiting - 80% of children diagnosed with NKH don't see their first birthday. The Mikaere Foundation supports Prof Nick Greene at UCL in London, who is the closest to a clinical trial for gene replacement therapy - a treatment which would radically improve the quality of life of kids with NKH. Please help us fund a cure!

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Donation summary

Total
£242.58
Online
£242.58
Offline
£0.00

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