Team Jeth do their first ever marathon

James Evans is raising money for The Society For Mucopolysaccharide Diseases (The MPS Society)

Participants: Bethan Shiers

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ABP Newport Wales Marathon 2018 · 29 April 2018 ·

The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Story

Team Jeth (James and Beth) are running their first ever marathon in Newport on 29/04/18.

Over two years ago James donated bone marrow to an unknown recipient. Last year we both (along with James' family) had the opportunity to meet Jack, the recipient. Jack has a rare disease known as Hurler syndrome. This means Jack is unable to break down a type of sugar known as mucopolysaccharides causing a buildup in his body. You can read more about getting to meet Jack here:

https://www.walesonline.co.uk/news/health/toddler-who-needed-bone-marrow-12832602

The MPS Society provides support for families affected by mucopolysaccharidosis and funds research. 

It's been a tough few months training for the both of us but that's nothing compared to what families such as Jack's are going through at times. So we would appreciate your support in helping us to raise some money for this fantastic charity.

Donation summary

Total
£715.00
+ £157.50 Gift Aid
Online
£715.00
Offline
£0.00

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