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At a routine growth scan at 34 weeks a mass was found on the baby, I was sent straight to Leicester for a specialist scan where they said she would need to be born by c section at Leicester Royal Infirmary as she had either cysts on her ovary or a twisted bowel. A follow up scan at 37 weeks noticed the mass had grown so was sent straight in for an emergency c section.

Mylah was born and taken straight out to be assessed, where they found she in fact had a sacrococcygeal teratoma (which is a tumour, that was growing inside her abdomen - causing her bladder and bowel to be crushed up into her ribcage - and was growing outside her bum/back) at 8 days old she underwent an almost 9 hour operation with below 9% chance of survival..this required her to be cut down her belly and back to remove the tumour and also removing the tailbone as that's where it was growing from. She was then finally discharged from hospital at 4 weeks old.

Following her discharge she underwent a lot of tests which shown that she couldn't empty her bladder herself and that she had permanent nerve damage down her leg causing a drop foot(from where the teratoma was sitting in her back) she required a suberpubic catheter and a splint for her foot. But she suffered from constant UTIs due to the catheter.

Then when she was 18 months old she required another operation, this time 7 hours, to rebuild her insides and try to fix some damage, they also put in a stoma bag alongside her usual catheter because they wanted nothing passing through where her body was healing. Then when she was 2 she had another operation where both the stoma and the catheter (which she had In place since birth) were removed to see if the surgery to repair damage had worked and if she could empty her bladder and bowel herself..she could empty her bladder but she struggles so much with the bowel and originally required daily suppositories, they then stopped working so now I have to do daily bowel washouts on her which she obviously hates due to the pain and discomfort they cause her.

All mylahs operations and day to day care so far has been done by the amazing paediatric surgeons at LRI and after recent scans shown she'll never be continent they are planning her next major surgery for this year. This is why we are trying to raise even more money for them to say thank you for saving our mylahs life and continuing to try and improve things for her. *We will be doing an abseil, fun day, raffles etc*

So please if you could give anything..big or small, it would be so greatly appreciated by us all.

Thank you for taking the time to read this and for your continued support in helping us give to this amazing hospital❤️