The Aarskog Foundation 10k Butterfly Run Queen Elizabeth Park, London

Participants: Delia Treby, Allayah Moore Sharon Barnes Colette Jobson Nicola Mason Stacey Frodsham Clair Treby Linda Henman Kim Redwood-Lee Michelle Erskine
Participants: Delia Treby, Allayah Moore Sharon Barnes Colette Jobson Nicola Mason Stacey Frodsham Clair Treby Linda Henman Kim Redwood-Lee Michelle Erskine
Cure EB Butterflyrun · 22 September 2019
Thanks for taking the time to visit #Team Aarskog JustGiving page.
The Aarskog Foundation has launched this campaign to raise awareness of our X-linked rare disease.
The lives of around 0.4 per million people across the world are living with this Rare Disease, which progresses into a serious life long condition of which to date there is no known cure.
The "Ask About Aarskog?" campaign seeks to raise funds for research and raise awareness around the importance of early diagnosis for children, critical to their future development, health and education, and to further address many life changing issues for Carriers, symptomatic of the Autoimmune disease Inflammatory Arthritis.
To make a donation, text 'AARSKOG' to 70085 to donate £5. This costs £5 plus a std rate msg. Alternatively, you can opt to give any whole amount up to £20. Thank you!
Charities pay a small fee for our service. Learn more about fees