Thanks for taking the time to visit our Just Giving page

Hi, our names are Grace and Freddie and we both suffer from a rare condition called 'desmoplakin deficiency'. After the ice bucket challenge triumphed in raising vital funds and awareness about ALS, we decided to start our own version called the 'DEBRA pebble challenge' to try and hopefully do the same. We have made a launch video where our little sister Joan is demonstrating for you all as our feet are too sore but we will walk it and all make our nominations.

The challenge is simple. All you have to do is place a flat pebble in your shoes or socks and then you must run or walk a distance of your choice (for example the length of a room or garden). The point of this challenge is so you can feel, if only for a very short time, what its like to have our condition and be walking on our feet the way they are every day. You can then nominate up to five people. They then have 24 hours to do the challenge.

If you could also please make a small donation to  this page, that would be amazing. However big or small that donation is, please know that every penny counts and we are very grateful.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.