Sarah Beth and Amandas page

Sarah Chapman is raising money for Genetic Alliance UK - Rare Disease UK

Participants: Beth, Amanda

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London Winter Walk 2019 · 13 January 2019 ·

Rare Disease UK is a national campaign for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support. Rare Disease UK is a campaign run by the charity Genetic Alliance UK.

Story

Thanks for taking the time to visit our JustGiving page.

We are raising money for Rare Disease UK.

1 in 17 people, or almost 6% of the population, will be affected by a rare disease at some point in their lives. This equates to approximately 3.5 million people in the UK and 30 million people across Europe.

Rare Disease UK work with health departments across the UK to implement the UK strategy for rare diseases to ensure that patients and families living with rare conditions have equitable access to high quality services, treatment and support.

We want to raise money for Rare Disease UK as Sarah has both Addison’s Disease and Avascular Necrosis and we all also have family and friends who suffer with other rare diseases. These diseases are so rare most people have never heard of them and there is no cure. We feel that by completing this walk and raising money for this charity, we are also raising awareness of rare diseases.

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Donation summary

Total
£315.00
+ £38.75 Gift Aid
Online
£315.00
Offline
£0.00

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