Jon Shaw Foundation was set up in memory of Jon, who died aged 19 from SUDEP (SUDDEN UNEXPECTED DEATH IN EPILEPSY) in June 2019. The charity aims to - 1. Support young people with epilepsy by providing grants for equipment such as alarms, monitors and other safety aids not normally available through NHS.2. Provide services and activities to improve the mental health of bereaved siblings. 3. Promote awareness of SUDEP, work with and support other organisations specialising in the research of this devastating cause of premature mortality.

My daughter Tia was sadly diagnosed with epilepsy 10 months ago. She has had some horrific seizures whilst sleeping. We want to get her an epileptic monitor which alerts her family and close ones when she is having a seizure so we can be with her and try to keep her safe. 

Jon Shaw foundation has kindly agreed to contribute some towards the monitor which will be a game changer for Tia and her family and friends. It means we can sleep without constant checking she is ok. It means she can have more freedom and independence like any other teenager. 

Please help by contributing to the Jon Shaw Foundation to enable us to get the equipment Tia needs.