Tracey Terry

Tracey's page to raise funds for Stickler Syndrome Support Group

Fundraising for Stickler Syndrome UK
£2,639
raised of £1,800 target
Donations cannot currently be made to this page
Event: London Marathon 2017, on 23 April 2017
Stickler Syndrome UK

Verified by JustGiving

RCN 1060421

Story

Thanks for taking the time to visit my JustGiving page.  I have decided to participate in the London Marathon to raise well needed funds on behalf of the Stickler Syndrome Support Group.

Stickler syndrome is a common but little recognised genetic disorder.  One in 10,000 persons may be affected, although many medical professionals believe that the figure is considerably higher.  Symptoms are variable and can present in different ways even with the same family.

Stickler Syndrome. Stickler syndrome is a group of genetically inherited conditions that affects the collagen (connective tissue) in a person’s body. Stickler Syndrome affects around 1 in 7,500 to 9,000 new born babies.

All donations would be greatly appreciated, as they will help to contribute to make a difference to enable the SSSG in many ways (some of which are listed below):

* By raising awareness of Stickler syndrome amongst medical professionals and the general public.

* By emphasising the value of early diagnosis for adults and children with the condition.
* By stressing in our literature, and to all professional and family contacts, that prompt treatment for retinal detachment and other eye problems associated with the condition can help to preserve vision.
* By helping to alleviate feelings of isolation and distress in affected individuals and families throughout the UK, especially when they are undergoing medical procedures related to Stickler syndrome.

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About the charity

Stickler Syndrome UK

Verified by JustGiving

RCN 1060421
Stickler Syndrome UK aims to raise awareness of Stickler syndrome amongst the medical profession; promote the value of early diagnosis and help preserve vision, hearing and mobility (particularly the prevention of sight loss in children and adults).

Donation summary

Total raised
£2,638.52
+ £483.00 Gift Aid
Online donations
£2,638.52
Offline donations
£0.00

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