Thanks for taking the time to visit my JustGiving page.  I have decided to participate in the London Marathon to raise well needed funds on behalf of the Stickler Syndrome Support Group.

Stickler syndrome is a common but little recognised genetic disorder.  One in 10,000 persons may be affected, although many medical professionals believe that the figure is considerably higher.  Symptoms are variable and can present in different ways even with the same family.

Stickler Syndrome. Stickler syndrome is a group of genetically inherited conditions that affects the collagen (connective tissue) in a person’s body. Stickler Syndrome affects around 1 in 7,500 to 9,000 new born babies.

All donations would be greatly appreciated, as they will help to contribute to make a difference to enable the SSSG in many ways (some of which are listed below):

* By raising awareness of Stickler syndrome amongst medical professionals and the general public.

* By emphasising the value of early diagnosis for adults and children with the condition.
* By stressing in our literature, and to all professional and family contacts, that prompt treatment for retinal detachment and other eye problems associated with the condition can help to preserve vision.
* By helping to alleviate feelings of isolation and distress in affected individuals and families throughout the UK, especially when they are undergoing medical procedures related to Stickler syndrome.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.