As some of you already know our gorgeous godson, Riley Faulkner was born with Moebius Syndrome.  Moebius syndrome is a rare neurological disorder that is present at birth.  It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces (they can’t smile, frown, suck, grimace or blink their eyes) and unable to move their eyes laterally.  Other cranial nerves may be affected, especially the 3rd, 4th, 5th, 9th, 10th and 12th.  There may be skeletal involvement causing hand/feet anomalies and/or club feet. Respiratory problems, speech and swallowing disorders, visual impairments, sensory integration dysfunction, sleep disorders, and weak upper body strength may also be present.  Approximately 30% of children with Moebius syndrome are on the autism spectrum.

Riley is a lovely baby boy who is developing well.  Having mastered the art of sucking his own bottle and now drinking from a cup himself he is definitely a strong and determined young man, as is his mother Abbey. 

Abbey has got together with various companies and arranged a family fun day on Sunday 29th January 2012.  It will be held at The Harlington Center, Fleet http://www.fleetcommunity.org.uk/leisure_tourism/harlington_centre.asp.  THere will be lots to do including games, bouncy castle and we are even raffling off our very own guys for a half days work for free!!!

If you dont want to attend this but would still like to make a donation you can do by donating here. 

Thank you all in advance and we look forward to seeing you there. xx