Story
At just 9 weeks old a very good friend of mines son was diagnosed with a rare genetic disorder called PWS (Prader-Willi Syndrome). So in August, his Dad, myself and 7 more intrepid fundraisers are attempting to climb Mt Kilimanjaro in Tanzania to raise awareness and money for the Foundation for Prader-Willi Research (FPWR).
Currently there is relatively little understanding about the syndrome and its challenges. The Foundation for Prader-Willi Research www.fpwr.org is a small charity that was set up by parents of children with PWS and aims to invest every penny of funds raised into high-quality research, leading to more effective treatments and eventual cure for this disorder.
I am funding this trip myself and therefore all your kind donations will go directly to the charity. If you want to follow my progress I'll be posting my handstands along the route at http://instagram.com/tristanmatt