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My friends Kate & Andre have a little girl called Naomi who has been diagnosed with Alternating Hemiplegia of Children (AHC). 

Naomi was diagnosed with Alternating Hemiplegia of Childhood (AHC) when she was 8 months old. This condition causes heartbreaking symptoms. 

Naomi can be paralysed (have absolutely no use of limbs) for up to 2 days at a time. She has also experienced episodes when her full body becomes totally limp and she is unable to lift even her head. Her speech can be affected when she has a paralysis, as can her swallowing. She has mild development delay which is accompanied by speech delay.  She has low muscle tone and so finds staying upright so much harder than other children her age. When she runs, she cannot keep up with her friends and often falls over. She often struggles to climb the stairs. She has had small seizures in the past. Naomi is on a high dose of medication to try to reduce the number of episodes she has. 

AHC is extremely rare - 1 in a million children have the condition. There are approximately 50 children in the UK and Ireland with AHC. 

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