As a lot of you know, Lucy was born with a Rare Chromosome Disorder, 10q26 deletion 2qtrisomy.  Yes she is that special/rare it doesn't have a name!  As you can imagine, this was extremely scary time for us as new parents, never mind this being our first baby! Genetics didn't have much information and the GP pretty much the same.  Thankfully through Unique, we were able to connect with other families in similar situations, with children with chromosome abnormalities. Finally we could see hope!! We had a lifeline! We may not have all the answers but we have Unique & to this day, they guide us daily!  

As a result of Lucy's Chromosome Disorder, she has low muscle tone, developmental delay, Nystagmus, Autism, a Moderate/severe learning difficulty ...the list of quirks go on!

We were told from an early age that Lucy may never walk!  Well check her strutting the next time you see her!!

One of this years milestones is that she learnt how to skip!! Seems like such a simple thing..right?  Let's all give it a go with a visual impairment and overpronating feet!  Absolute LEGEND she is!

SOOO Lucy has decided she wants to raise this money all by herself over 23 days, 1st - 23rd June to coinside with Rare Chromosome Awareness Week!!  She is going to keep it all fun and is going to start with skipping, then running, then who knows!

GO ON...can you spare £1