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As many of you who know me i've not been a active person but have decided to start training to run so i can run for a charity that is close to my heart - max appeal

max appeal help families like my own to support, give advice and arrange many day out trips for people affected by 22q11 deletion which can cause over 180 symptoms like heart abnormalities, emotional and mental health problems, problems with palates, learning differculties, problems with bones and muscles and many other problems.

for more information please visit www.maxappeal.org.uk

our story:

My daughter was born in july 2010, she was born with bilateral talipes (clubfeet) which we found out at my 5 month scan, she was put in casts from her groin to her feet on both legs for the first 3 months and after having her tendons cut at the back of her heel she was put in boots and bar brace which she has to wear until she is 5 years old. She had problems with her feeding and temperture when she was born resulting in her being in trevor mann baby unit for a week being fed through a tube up her nose and being in a heated cot. After being let home Katie was like an other baby but was in and out of hospital with a few chest infections and was a little delayed with sitting up and crawling. When Katie was 8 months old she got pnemonia which resulted her to being very unwell and was in hospital for a few weeks, after 6 weeks we went back to the hospital for scans to make sure the shadow on her chest had gone and after being told it wasnt we was put aside to be told there might be something wrong with her heart and they thought she had 22q11 deletion. Just before her 1st birthday her tests results came back positve for 22q11 deletion and was told she had a VSD hole in the heart and she had a disconnected pulmonary artery. Thats when we turnt to max appeal who helped us understand what 22q11 ment and gave much needed support. In march 2012 Katie had open heart surgery to mend her hole in the heart but couldnt connect her pulmonary artery as was to risky. After her successful heart operation we was then told she had one kidney and no gullbladder. She is now being investigated for a sub mucus cleft palate as she cant really talk or pronance words as she should be at 4 years old, which could result in more surgery. For the last year her legs have got worse with leg pains which means walking is causing pain and swelling so has recently been given a wheelchair which she uses most days. To look at katie you cant tell anything is wrong but to think of everything she has been through and to not know what could happen in the furture is hard but with the support of max appeal we are managing to fight through things as a family.

This is the reason why i want to start running for max appeal charity so they can help many other families like myself to support them and to keep raising awareness.

please dig deep to support max appeal.

THANK YOU