Vito's page

Vito Saponaro is raising money for AT Society
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Brighton Marathon 2021 · 12 September 2021 ·

The AT Society is the only charity supporting children and young people with Ataxia-Telangiectasia (AT) and funds for research to find a cure. We offer families an essential lifeline of advising and support through the many challenges they face. Life expectancy is currently just 26.

Story

Vito’s story

Thank you for visiting my page. I’d like to explain a little bit about the charity I am fundraising for and why I’ve signed up to run the Brighton Marathon on 19th April this year. Please read below:

Our daughter Ava, was diagnosed with AT at the beginning of 2019. It shocked and saddened our family but we quickly picked ourselves up and accepted our new ‘normal’ and are living our lives to the full and loving every day.

The A-T Society exists to enable people with A-T to make the most of the lives they have. They are unique in that they both support people with A-T and fund research.

Ataxia-Telangiectaisa (“A-T”) is a complex genetic disease which affects many parts of the body and causes severe disability. The symptoms include lack of balance, slurred speech and perhaps a more than normal number of infections. There is currently no cure or treatment.

The A-T Society is a small national charity, unique to the UK in the services it offers families. Since its foundation in 1989, the Society’s objective has been to alleviate the distress and suffering caused by A-T.

The A-T Society provides support services for families, funds research and specialist A-T clinics, and helps raise awareness.

I am hoping to raise as much money as possible to help fund the critical research which will benefit many families in the UK who live with this condition.

The AT Society have supported our family through our most difficult days and they work tirelessly to ensure families are truly supported.

Thank you for visiting my page. It would mean so much if you can please support me, however big or small - I am grateful for any donation.

Vito

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Donation summary

Total
£2,877.61
+ £525.60 Gift Aid
Online
£2,877.61
Offline
£0.00

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