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Wolf Hirschhorn Syndrome is a deletion of chromosome 4 which causes multiple medical, development and physical conditions for children born with this syndrome. There is no cure to prevent this deletion. Our children require constant care and specialist provisions throughout their life even when they become adults.

They are not able to live independently and therefore will always need ongoing care and support.

The Wolf Hirschhorn Syndrome Trust aim to support all families in the UK and Ireland, through biannual National family conferences and ongoing Regional gathering. Regular yearly newsletters for families, supporting research into the syndrome, liaising with other international support groups. Help families with grants that are not met by other organisations for specialist equipment or support to attend any Regional or National events so they can meet and gain support and advise from over families.

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