The Hibbs Lupus Trust supports people affected by lupus to make sure that no one faces lupus alone. We provide support and information to anybody affected by or concerned about lupus. Lupus is a chronic and presently incurable illness of the immune system. Rather than just fighting viruses, bacteria and infection by producing antibodies, your body starts to attack and destroy healthy cells, tissues and organs.

I got sick at 17, diagnosed at 19 at The Louise Coote Lupus Unit at Guy's & St Thomas' Hospital. Now aged 34, it has taken a big turn for the worse since Osian was 4 weeks weeks old. I have a range of symptoms including swollen and painful joints from my jaw to my feet, extreme fatigue, skin sensitivity and rashes, chronic migraines, mouth ulcers, hair loss, brain fog (cognitive issues which affect my memory and especially my speech), and trouble regulating my temperature. Lupus can lead to a weaknesses in the body. I am particularly suffering with my hands currently. Unable to do basic tasks at times like get myself and Osian dressed, open a bottle or carry a little a bag. Fortunately I do not have any organ damage yet but take a range of medication such an immunosuppressive medication including biologic infusions to help stop this from happening. Lupus often has its friends which are other conditions that you are prone to. My Lupus has several friends. A blood clotting condition called Antiphospholipid Syndrome (sticky blood- bloods clots to easily causing clots) , secondary Sjorgens (I suffer with dry eyes, dry mouth, nose and mouth ulcers), Fibromyalgia (painful tender points around my body usually on muscles, fatigue, brain fog and nerve pain. 

I have an amazing team at the RNHRD at the RUH Bath and will be attending for my next infusion this month. Let's hope this helps improve and control this flare up and my symptoms.

So please help me help the Hibbs Lupus Trust continue to help me and lots of other amazing Lupus warriors I know all over the world.